Eds london

Instead, people with these conditions may find it more useful to see other specialists who can help you with advice about management, such as a local rheumatologist, physiotherapist or a paediatrician. If you do not hear from us and it has been more than six weeks since your referral to us, please contact us to check that we have received your referral.

We accept referrals from NHS specialists in secondary or tertiary care for both adults and children. We will only accept referrals from GPs or private consultants if the patient has a confirmed molecular diagnosis of a rare EDS type or is a family member of a person with a molecularly confirmed rare type of EDS. Instead GPs can refer patients with a suspicion of an inherited connective tissue disorder or rare type of EDS to their local genetic service.

Please include the following information in the referral which can be sent to us at the above address or by email - LNWH-tr. EDSLondonOffice nhs. Should the referral not meet our criteria we will recommend other NHS services who can help to manage your condition. Read our cookie policy for more information. Service finder translate Site map Cookies Accessibility Contrast:. About us Performance and safety Referrers and professionals Researchers. Mark's Hospital Your outpatient appointment Blood tests Online appointments Your online appointment letter Change my appointment Your planned procedure or endoscopy During your stay Mealtimes, food, and menus Visiting a friend or relative Care packages for your loved ones Tell us about your care Patient Advice and Liaison service PALS Complaints Friends and family test Important information about your care Giving your consent Your medical records Referral to treatment Information for people who are transgender, intersex, or non-binary Overseas visitors Single sex accommodation Car parking All Patients and visitors.

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Plan for staying at home Checklist: are you ready? Now viewing: Home Our services Service finder Back to our services. Conditions we care for We see people with a suspected or confirmed diagnosis of rare type of EDS. There are several rare types of EDS including: classical vascular kyphoscoliotic periodontal. This is the highest level of the award.

Our survey aims to provide vital feedback to the Big Lottery Fund and helps us to secure continued funding. The voting in both the adult and junior categories was SO close, but we had two clear winners of the Bake-In. Schools Toolkit A free resource aims to provide school staff with information about symptomatic hypermobility and EDS.

Visit the toolkit. Buy now. Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care. What are the Ehlers-Danlos syndromes? Get Involved Your fundraising, donations, subscription and volunteering could be life-changing. Support Groups Find your nearest Support Group and reach out to others who understand.